Politics

Disability campaigners urge Burnham to delay assisted dying bill until care system is fixed

Disabled and terminally ill campaigners, including actors Liz Carr and Ruth Madeley, have written to the Prime Minister calling for social and palliative care reform before assisted dying legislation proceeds in England and Wales.

By Ron J Jones | 18 August 2026
A stunning view of the Houses of Parliament and Big Ben alongside the River Thames in London, England.

Disabled and terminally ill campaigners have written to Prime Minister Andy Burnham urging him to reform social and palliative care before assisted dying legislation is introduced in England and Wales.

The Assist Us To Live group says people are currently being "failed by society" and that "introducing assisted dying in these circumstances will put sick and disabled people's lives at risk".

Burnham has previously said the funding of palliative and social care should be "fixed" before assisted dying is considered. The government is expected to remain officially neutral on the bill, but the Prime Minister's remarks suggest he personally will not back the proposal put forward by Labour MP Lauren Edwards.

Supporters of the bill argue that improving care services and giving terminally ill people "autonomy" over their final weeks must go hand in hand, rather than one being a precondition for the other.

The proposed law, known as the Terminally Ill Adults (End of Life) Bill, would allow people over the age of 18 who are expected to die within six months to be given help to end their own life, subject to certain safeguards. Having a disability in itself would not entitle someone to seek such help.

This is the second time a backbench bill of this kind has gone through the House of Commons. MPs voted in favour of a bill proposed by Labour MP Kim Leadbeater in 2025, but it was not passed by the House of Lords after an unprecedented number of suggested amendments delayed its progress until it ran out of parliamentary time in April this year.

Edwards reintroduced an identical bill in June, saying she wanted to "finish the job" started by Leadbeater. It is due to be debated in the Commons on 11 September.

Opponents of the bill believe the legislation has substantial flaws and would pose risks to disabled people, potentially putting pressure on them to end their lives. The Equality and Human Rights Commission, the UK's regulator, has said the legislation is "likely to have particular impacts on people with certain protected characteristics, especially older and disabled people".

Last year, the commission's chair, Baroness Falkner, said: "While the bill provides safeguards against a person being coerced or pressured to end their own life by another individual, we know that disabled people, older people and especially older disabled people, may feel pressured to prematurely end their lives by societal attitudes and a lack of the support and services they need."

Edwards has said there is time to improve end-of-life care before any assisted dying service would come into effect under her proposed law, given that a four-year implementation period had been agreed during previous debates.

Comedian Rosie Jones, and actors Liz Carr and Ruth Madeley are among dozens of prominent disabled people from the arts, media and academia who have signed the open letter to MPs.

The letter states: "At the moment, sick and disabled people, including terminally ill people, are denied choice over the most basic of things: our ability to get out of bed, wash, eat, leave our houses or manage our pain. This creates a coercive environment where people will choose an earlier death simply because they are being failed by society."

It continues: "Put simply, introducing assisted dying in these circumstances will put sick and disabled people's lives at risk. No one wants any terminally ill person to suffer unnecessarily at death. But we must protect the lives and rights of disabled and terminally ill people in life."

The group is calling for increased funding for palliative care so that "no one feels pressured to end their lives simply because they are not receiving the medical help they deserve". It also calls on the government to abolish the social care savings threshold for working-age people and to equalise staff pay between social care and the NHS.

Kyla Harris, who co-created and starred in the BBC comedy series We Might Regret This about disabled life, told the BBC that disabled and terminally ill people needed "structural and social support to live, not to die". Harris, from Canada, was 15 and "on the verge of independence" when she sustained a life-altering spinal cord injury, leaving her tetraplegic and requiring round-the-clock care.

Asked about the assisted dying bill, she said: "We are treating people like animals who need to be put down. The money you put into trying to get this bill through takes away from the social services, making palliative care more accessible for people so that they can die in their homes."

Not all campaigners agree with the call for delay. Pamela Fisher, who is terminally ill with breast cancer, said there is an "unhelpful perception that both social care and end-of-life care need to be 'sorted' before we can properly consider the possibility of legalising assisted dying in the UK".

Fisher, a Church of England lay preacher and academic from Huddersfield who supports the bill, said: "This sets an impossible standard. The reality is that social care and end-of-life care will always be works in progress, rather than systems that can ever be declared perfect once and for all."

Fisher said there is a need to progress reforms to care services, but added that the fact they are "imperfect cannot, in itself, be a reason to deny terminally ill people autonomy over the circumstances of their death".

Andrew Copson, chief executive of Humanists UK, which supports a change in the law, said he hopes MPs will "look past renewed attempts to derail this long-overdue change" when the bill is debated in the Commons next month.